Meet Maddie
Meet Maddie
In Maddie’s case, the effect of her syndrome has been severe, causing multiple disabilities and leaving her tube fed and unable to walk or talk. Over the 21 years since Maddie’s birth, we have experienced first-hand the challenges of caring for our special angel and realize how fortunate we have been to have the resources to provide for her care. It also made us think deeply about how difficult our situation would be if we did not have the ability to pay for the care and equipment that Maddie needs to have any reasonable quality of life.
From the big things like having functional mobility devices and lifts, special beds and bathing equipment in the home to the endless routine of daily medical and hygiene-related activities, caring for a child such as Maddie takes a lot.